PRIVACY POLICY
1. Data Controller
In compliance with Regulation (EU) 2016/679 of 27 April (GDPR) and Organic Law 3/2018 of 5 December on the Protection of Personal Data and guarantee of digital rights (LOPDGDD), you are informed that the controller responsible for the processing of personal data collected through this website is:
Name: ASOCIACIÓN ENFERMOS DE KENNEDY ESPAÑA (ASEK-E)
Tax ID (NIF): G22632152
Registered address: Calle Doctor Fleming, number 3, Puerta 3, 41510 Mairena del Alcor (Seville), Spain
Date of incorporation: 20 May 2025
Territorial scope: National
The Association is established under Organic Law 1/2002, of 22 March, regulating the Right of Association.
2. Personal data collected
The following personal data may be collected through the website:
- First and last name.
- Email address.
- Telephone number, where applicable.
- Any other data voluntarily provided by the user through forms or electronic communications.
The provision of data is voluntary; however, certain fields may be mandatory in order to properly process the request submitted.
3. Purpose of processing
Personal data will be processed for the following purposes:
- Responding to information requests submitted through the contact form.
- Managing communications related to the statutory purposes of the Association.
- Managing relationships with members, volunteers, or collaborators, where applicable.
- Complying with legal obligations applicable to the Association.
4. Legal basis for processing
The processing of data is carried out on the following legal bases provided for in Article 6 of the GDPR:
- Consent of the data subject when voluntarily providing their data.
- Compliance with legal obligations, where applicable.
- Legitimate interest of the Association in relation to its statutory purposes.
5. Data retention
Personal data will be retained:
- For as long as necessary to fulfill the purpose for which they were collected.
- While a relationship with the Association exists.
- For the legally established periods required to comply with legal obligations.
6. Recipients of the data
Personal data will not be disclosed to third parties, except in the following cases:
- Legal obligation.
- Request by competent authorities.
- Service providers acting as data processors with whom the corresponding agreement has been formalized in accordance with Article 28 of the GDPR.
No international transfers of data outside the European Economic Area are foreseen.
7. Rights of data subjects
The data subject may exercise the following rights:
- Right of access.
- Right to rectification.
- Right to erasure.
- Right to object.
- Right to restriction of processing.
- Right to data portability.
Furthermore, the data subject has the right to withdraw consent at any time, without affecting the lawfulness of processing based on consent before its withdrawal.
To exercise these rights, a written request must be sent to the Association’s registered address or contact email, accompanied by a copy of an identification document.
You may also lodge a complaint with the Spanish Data Protection Agency (AEPD) if you consider that the processing does not comply with current regulations.
8. Security measures
The Association adopts the technical and organizational measures necessary to ensure the security and integrity of personal data, in accordance with Article 32 of the GDPR.
9. Accuracy of data
The user guarantees that the data provided are truthful, accurate, and up to date, and is responsible for any damage or harm arising from the communication of incorrect data.
10. Amendments to the Privacy Policy
The Association may modify this Privacy Policy to adapt it to legislative or jurisprudential developments.
In the event of substantial changes, users will be duly informed.